Health Privacy Rights
Do you think that you have a federal right to health privacy? If so, you might be surprised to learn that under the federal Health Insurance Portability and Accountability Act of 1996 (HIPAA) medical privacy rule, your personal health information—including past records—can be disclosed to more than 600,000 health-related organizations without your consent . . . (continue reading)
||Massachusetts Requires Doctors, Insurers to Submit Data on Postpartum Depression
||Proposed Changes to Privacy Rule Won’t Ensure Privacy
||What Every American Needs to Know about the HIPAA Privacy Rule (Updated March 2010)
||Patient Advocacy Groups Urge Greater Focus on Patients’ Choice and Privacy Rights in Health-Reform Debate
||Three Health-Freedom Bills Introduced in Congress
||Act Now to Strengthen and Preserve Your Health Freedom and Privacy
||FTC Asks for Public Comment on Notification of Health Data Breaches
||How the Economic Stimulus Law Affects Your Health Privacy Rights
||A Positive Perspective on Health Privacy Rights
||Are We Heading Toward a Nationally Linked Electronic Health-Records Network? Take the National Health Information Highway Quiz
||Both House and Senate Versions of the Economic Stimulus Bill Fail to Ensure Patient Consent for Health Privacy
||Economic Stimulus Bill Mandates Utilization of “an” Electronic Health Record for Every American by 2014
||Congress Needs to Add Opt-out and Consent Provisions to Health IT to Ensure Quality Health Care
||Notable & Quotable: HHS’s Comments on Privacy and Quality
||Economic Stimulus Bill Mandates Electronic Health Records for Every Citizen without Opt-out or Patient Consent Provisions
||Economic Stimulus Package and Your Health Privacy
||Should Medicare Providers Be Forced to Use Electronic Medical Records?
||Blue Cross Mistakenly Discloses Private Health Information
||What Every American Needs to Know about the HIPAA Privacy Rule
||“Broad” Adoption of Electronic Health Records Forthcoming
||Minn. Governor Protects Genetic-Privacy Rights; Vetoes “DNA Warehouse” Bill
||Standing Strong for Health-Privacy Rights
||Anti-Discrimination Bill Inadvertently Legalizes Sharing of Genetic Information Without Patient Consent
||Large Employers Push Health IT Legislation
||Will Individuals Store Their Medical Information in a National Health Information Network?
||Privacy-Conscious Congressman’s Health Data on Stolen Laptop
||CCHC Urges President Bush to Veto Newborn Genetic Screening Bill (S. 1858); Says Bill Lacks Privacy, Property Rights and Informed Consent Safeguards
||Who Will Be the Gatekeeper of Personal Health Information?
||Feds Seek to Harmonize State Health-Privacy Laws
||“Wired for Health Care Quality Act” Threatens Privacy and Control over Personal Information
||Microsoft Seeks Patent for System to Remotely Monitor Office Workers
||Poll Shows Americans Endorse “Consent of the Studied”
||Microsoft Launches Free HealthVault for Storing and Sharing Medical Information Online
||Executive Order Paves the Road to “Interoperable” Medical-Records Tracking of 100 Million Americans
||Should Congress or a Federal “Entity” Establish Your Privacy Rights?
||Health-Privacy Breaches Challenged in State Courts, Feds Continue to Receive Complaints
||Forgo Government Care and Seek Private Treatment for Sensitive Issues, Says Concerned Foreign Service Officers
||Will Bill Gates Help Pave the Way to True Health-Privacy Rights?
||Americans Are Concerned about Privacy of Electronic Records, Survey Finds
||Is Insurers’ Plan to Give Patients Personal Health Records a “Wolf in Sheep’s Clothing”?
||HHS Asks for Comments on Plans for Electronic Health Records and Genomic Medicine: Submit Comments by February 5!
||What Every Worker Should Know about Electronic Medical Records
||Massachusetts Universal Health Insurance Raises Questions about Patient Privacy
||Massachusetts Blue Cross Blue Shield to Collect Mental Health Information
||Health Privacy Roundup
||Patient Privacy Group Denounces Blue Cross Blue Shield Plan to Disclose De-identified Data of 79 Million Enrollees
||Congress Considers Important Health Privacy Legislation: Share Your Views
||Federal Government Funds Random Home Health Checkups
||Congress Set to Override State Medical-Privacy Rights
||Legislation Introduced to Digitize Federal Employee Health Records
How Massachusetts’s Health Plan Affects Privacy and Liberty
||Online Analysis of the Massachusetts Health Plan
||The Massachusetts Health-Insurance Bill Mandates New Taxes and Privacy Invasions
||What Every American Should Know about the Massachusetts Mandatory Health-Insurance Legislation
||Body Snatching? Why We Need Informed Consent and True Health Privacy Rights
||$5.5 Billion in 2007 Budget for Building a “Federal Health Architecture”
||Congress to Gut State Medical-Privacy Laws?
||Congress Could Vote Soon on a Bill that Abolishes State Health-Privacy Rights: Act Now to Voice Your Own Opinion about H.R. 4157.
||New York City Begins Tracking and Monitoring Diabetics
||Survey Shows Most Americans Are Concerned about Health Privacy
||“Wired for Health Care Quality Act” Deeply Flawed
||Appeals Court Affirms Weak Federal Privacy Rule, But Opens Door to Stronger State Privacy Laws
||Is Big Brother Planning to Tag and Track Prescription Drugs Electronically?
||Strong Supporter of EMRs Considers Presidential Run
||Electronic Medical Records (EMRs): Trick or a Treat?
||Government and Industry Groups Increase Push for Electronic Medical Records
||President’s Message: How Would Washingtonians Want to Be Treated?
||Prescription for Privacy Invasions
||Growth in Federal Health Programs Results in Massive Collection of Personal Information
||HHS Proposes Centralized “System of Records” for Health-Care Investigations
(Submit Public Comments by AUGUST 7!)
||Medical Laboratories Could Be Compelled to Report Citizens’ Blood-Sugar-Test Results to Local Governments
||What All Americans Should Consider Regarding H.R. 2234 ("21st Century Health Information Act of 2005”)
||Hillary Clinton and Newt Gingrich Support Legislation That Could Increase Medical Privacy Risks
Should a Federal Committee Recommend Making Your Family’s Genetic History Available on the Internet?
||Why the Right to Contract Privately Must Be Upheld
||Most Americans Are Uninformed about Plans for a National Electronic Medical Records (EMRs) System
||President’s Message: Why I’m Staying Optimistic about Health Privacy (by Sue Blevins)
||Who’s Shaping Our Genetic Health Policies?
||What the FDA Won’t Tell You about the VeriChip
||IMPORTANT REMINDER: Submit Your Comments on the Forthcoming National Electronic Medical-Records Network by JANUARY 18, 2005!
||Hospital Association Urges HHS to Eliminate Citizens Right to Public Health Disclosure Information: Currently, citizens are entitled to know if their health information was disclosed to public health officials for purposes such as tracking communicable diseases or placement in a cancer or other disease registry. But HHS is considering eliminating this right to know.
||Share Your Comments on the Forthcoming National Electronic Medical-Records Network: Do you approve of having your personal health information (including mental-health records and genetic data) linked to a national electronic medical-records network and widely used without your knowledge or permission?
||Update on Unique Health Identifiers (UHIs): Are you ready for a tracking number that could be used to monitor your personal health information from cradle to grave?
||The Federal Government Tells Families to Discuss and Document Health History on Thanksgiving. What should families consider regarding this initiative?
||A Good Way to Spend Thanksgiving?
||No True Health Privacy? Many citizens complaining about medical privacy breaches are not being helped by the federal rule.
||FDA is Planning to Track Dietary Supplements Using Data-Mining Technology
||President Bush Proposes Screening the U.S. Population for Mental Illness
||Will Americans Lose Their Privacy with Electronic Medical Records?
||Can You Have True Health Privacy
Under Nationalized Health Care?
||Are You Ready for a National Health ID Number? Rep. Paul calls for repeal of mandated national health ID.
||Five-Page "Notice of Privacy Practices" Reveals Important Information
||Federal Medical Privacy Rule and Tying Games: What does getting a copy of one's own medical records have to do with medical privacy?
||April 14 Federal Medical Privacy Rule is About Sharing Data
||Americans Need to Become Fully Informed about the Federal Medical Privacy Rule: The Institute for Health Freedom sponsored a panel discussion at the National Press Club on March 6 to inform the media, policymakers and public at large about the forthcoming Federal Medical Privacy Rule.
||The Final Federal Medical Privacy Rule: The Definitive Guide.
||Who Decides? How much medical privacy will Americans have when the Federal Medical Privacy Rule takes effect on April 14, 2003? The Institute for Health
Freedom is sponsoring a panel discussion at the National Press Club on March
6 to inform the media, policymakers and public at large about the forthcoming
Federal Medical Privacy Rule. The Rule, which takes effect on April 14, 2003,
is going to drastically change citizens' ability to control the flow of their
personal health information.
||Federal Workgroup Meets to Discuss National Health Information Infrastructure (NHII): The federal Workgroup on the National Health Information
Infrastructure (NHII) is working to develop a national health-information
system and electronic personal medical records for U.S. citizens.
||Background of the NHII and Workgroup: What is a "National Health Information Infrastructure" (NHII)?
||What Every American Needs to Know about Medical Privacy: If you care about medical privacy, you'll want to read this brochure care
fully. You're going to hear about these issues eventually, but the Institute for Health Freedom wants you to have this information now so that you (and your family) can take steps to control who has access to your health and genetic information.
Are you fully informed about the new federal medical privacy rule? This brochure answers the following critical questions: How did the new federal medical privacy rule come about?
How will the federal medical privacy rule affect you and your family?
Will you be able to find out if your personal health information is flowing over the Internet and released to others without your permission?
||Citizens are Concerned about Electronic Transmission of Medical Data: "Seventy-seven percent of consumers surveyed say they are concerned with their doctors' sending medical information to an insurance company over the Internet." Even so, soon doctors will be legally required to submit most Medicare claims electronically.
|| Will Unique Health Identifiers Become a Reality in the United States? That depends on whether or not Congress continues its moratorium on federal funding for unique health identifiers.
|| The Peril to Our Privacy: How did the federal medical privacy rule come about? Who was behind it? What can Americans do to protect their medical privacy?
|| The Truth about the Modified, Final Federal Medical Privacy Rule: An updated analysis of the rule.
|| Newly Modified, Final Federal Medical Privacy Rule Eliminates Citizens' Control over Their Personal Health Information: A press release covering the October 21 conference at the National Press Club.
|| How Does the Federal Medical Privacy Rule
That Went into Effect October 15, 2002
Affect Citizens' Health Privacy? Join us for a panel discussion to hear several experts discuss
|| Legal Challenge to the Federal Medical Privacy Rule - A law firm representing the American Psychoanalytic Association is considering filing a lawsuit challenging the constitutionality of the Federal Medical Privacy Rule, which takes effect October 15, 2002.
Past, Present and Future Private Medical Records Will
Become Open to the Federal Government (HHS), Data-Processing
Companies, Insurers, Hospitals, Doctors and OthersWithout
||Individuals Lose But Government
and Corporations Gain Control over Personal Health &
Genetic Information - Bush administration grants data-processing
companies and other health care industries new federal
regulatory authority to collect and share individuals'
personal health informationincluding genetic informationwithout
|| When it Comes
to Medical Privacy, Notification is Not Equal to
Consent - The consent policy gives parents full control
over their children's health care, while, in contrast,
a notification policy denies such control.
|| IHF Press Conference
on Federal Medical Privacy Rule
|| Bush Administration Calls
for Public Input on Final Medical Privacy Rule - Citizens have until to submit their comments on proposed changes to the federal
medical privacy rule.
|| Update on the Federal
Medical Privacy Rule: Questions and Answers - How
will proposed changes to the federal medical privacy rule
affect your ability to control the flow of your personal
|| Medical privacy under assault: Bush administration ignoring
pleas to tighten confidentiality - HHS is clearly
siding with [health care industry] special interests.
Link to WorldNetDaily.com article.
|| How Will the Federal Medical
Privacy Rule Affect Patients' Control Over Personal Health
Information? - A panel discussion to find out how
the proposed changes will impact patient, government,
and industry control over medical information.
|| HHS Proposes New "Centralized"
Medicare Database - Public has until January 15,
2002 to comment.
|| Public Hearing on Federal
Medical Privacy Rule and Patient Consent - The federal
medical privacy rule went into effect on April 14, 2001
and covers nearly every citizen--whether health care is
paid for privately or federally funded.
|| Testimony Before the
Pennsylvania Senate Communications and High Technology
Committee - Simply because we have new technology
that facilitates the exchange of medical information electronically
does not mean that we should eliminate the important legal
concept of informed consent.
|| Congressional Briefing
on Medical Privacy - On Wednesday, May 16, Congressman
Ron Paul (R-TX) sponsored a congressional briefing titled
"Myths and Facts About Medical Privacy."... The following
briefing materials were presented to each of the staff
persons who attended the briefing.
|| Congressman Paul Introduces
Legislation to Repeal Federal Medical Privacy Rule - Allowing government officials to access a private person's
medical records without a warrant is a violation of the
Fourth Amendment to the United States Constitution. .
|| President Bush Orders Final
Federal Medical Privacy Rule to Take Effect - The
medical industry told HHS the federal medical privacy
rule is too costly, while concerned citizens say the rule
doesn't go far enough to protect patient privacy.
|| Who Owns Your Genetic
Information? - Americans concerned about genetic
privacy and ownership rights should carefully read consent
forms when undergoing medical procedures and treatments.
|| HHS Calls for Public Comments
on Final Medical Privacy Rule - Share your comments
about the final federal medical privacy rule by March
|| The new medical privacy regulations: Will they protect
our most personal information? - Link to a Cato Policy
Forum available via Real Video.
|| The Final Federal Medical
Privacy Rule: Myths and Facts - How does the final
federal medical privacy rule affect your privacy?
|| Senate to Hold "Public"
Hearing on Final Medical Privacy Rule - Will True Privacy Advocates' Voices Be Heard?
|| Should Community Rights
Override Individual Rights to Privacy? A Book Revi
ew - The principle that "the community" should balance individual
rights and the common good is a euphemism for mob rule.
|| IHF Hosts Roundtable Discussion
of Patients' Rights - The first principle of the
Nuremberg Code is "The voluntary consent of the human
subject is absolutely essential."
|| HHS Releases Its "Spin"
on Medical Privacy Rule - The final national medical
privacy rule deserves serious analysis and responsible,
independent investigation by as many people and organizations
|| Medical Records: For Your Eyes
Only? - An illustration.
|| IHF Holds Press Conference
to Release Gallup Survey on Medical Privacy - "Medical
research--in any shape or form--is not so lofty an activity
that it can afford to disrespect the rights of patients,"
says Twila Brase.
|| Gallup Survey Finds Americans'
Concern About Medical Privacy Runs Deep - Key findings
include: 91 percent oppose a federal requirement to assign
everyone a medical identification number.
|| Public Attitudes
Toward Medical Privacy - This report is based on
the results of a survey conducted by The Gallup Organization
on behalf of the Institute for Health Freedom.
|| Gallup Survey on Medical
Privacy for Release September 26 - "...we wanted
to find out how the general public views the issue [Medical
|| Motor Vehicle Administration
Has Your Social Security Number . . .and With It, a Whole
Lot More - All citizens should be concerned about
the proliferating government efforts to obtain their Social
Security Numbers (SSNs) without appropriate justification.
|| Congress Temporarily Halts
Funding of Unique Health Identifier: Will President Clinton
Sign It into Law? - Once the temporary moratorium
on the Unique Health Identifier expires, Americans sooner
or later will likely be assigned a tracking number to
monitor their medical records electronically.
|| Congress Holds Hearing
on Repealing Unique Health Identifier and Limiting Use
of Social Security Numbers - Imagine the potential
for abuse if an unscrupulous government official is able
to access one's complete medical, credit, and employment
history by simply typing the citizen's 'uniform identifier'
into a database.
|| Americans Respond to Medical
Privacy Regulations - Over 52,000 Americans and organizations
responded to proposed medical privacy regulations.
|| IHF's Letter to Secretary
of Health and Human Services, Donna Shalala - Americans
deserve to know the truth about how the proposed federal
medical privacy regulations relate to the Unique Health
Identifier and whether the rule will limit or increase
access to individuals' personal medical information.
|| Stop Big Brother From Prying
Into Your Medical Records - Here's a new and easy
way to tell the federal government how you feel about
protecting the privacy of your medical records.
|| What's Happening with the
"Unique Health Identifier" Plan? - Isn't it ironic
that some members of Congress who today push "patients'
rights" actually helped pass the 1996 law that will allow
the federal government to tag and track each person's
medical records electronically?
|| Comment Period Extended
for Medical Privacy Rule - Americans Have Until February
17, 2000 to Comment on Proposed Medical Privacy Regulations.
"Individuals -- not the federal government -- should decide
when, where, how and to whom their medical information
|| Coming Soon. . . Every American
Will Be Assigned a "Unique Health Identifier" - Every
American will soon be assigned a "unique health identifier"
(a patient ID number). How did this all come about? What
can be done to stop it?
|| What Americans Need To Know
About Medical Privacy Regulations - Did you know
that under the proposed privacy regulations, individuals
will not be able to sue if their medical privacy is invaded?
|| Act Now To Protect Your
Medical Privacy: Americans Have 60 Days to Comment on
Proposed Medical Privacy Rule - The public is being
told they have a new right to medical privacy when, in
fact, they can't sue or bring a private course of
for damages caused by a breach of confidentiality, under
|| Government Begins Collecting
Data on Homebound Seniors & Disabled - What's most
astonishing about Medicare's OASIS program is that that
the government is not only collecting data on homebound
patients, but on their caregivers too! That includes husbands,
wives, children, or whoever else assists seniors and the
disabled in their homes.
Privacy Information Center: Medical Record Privacy - Information from your medical records may influence
your credit, admission to educational institutions, and
employment. It may also affect your ability to get health
insurance, or the rates you pay for coverage.
|| Attention Medical Privay
Advocates: Congress Needs Your Input by August 3! - The debate over medical confidentiality is heating up
on Capitol Hill. If you're concerned about your medical
privacy, then you need to voice your personal opinion
|| Medical Privacy Alert: Just
Three Weeks to Act! - Can such vague legislation
really guarantee that researchers won't be able to trace
back patients' personal information -- including genetic
and cellular information?
|| Medical Privacy Alert: Congress
Faces August 21 Deadline - "Individual medical records,
including patients' genetic information, could be disclosed
by health insurers to credit card companies and other
|| Does Government Need to Know
if Grandpa Curses? Heritage and ACLU say NO! - HCFA
has yet to explain how any of its objectives can justify
overriding the Fourth Amendment of the U.S. Constitution,
the requirements of medical ethics, and the federal regulations
on research involving human subjects.
|| What's Congress Doing About
Medical Privacy? - Will Congress pass a bill that
truly gives consumers the ability to maintain their medical
|| Are We Headed For A Medical
Privacy Invasion? - "A growing number of Americans
feel they are losing control over their medical privacy.
That loss is real," stated Blevins. Congress Faces August
21 Deadline; Mark-Up Begins June 15.
| Institute for Health Freedom
To Host Panel Discussion on Medical Privacy Issues - The deadline is approaching. If Congress does not pass
a medical privacy law by August 21, 1999, then the Secretary
of Health and Human Services (HHS) is required to establish
regulations governing your medical privacy.
|| Who Controls Your Medical Records? - Most states
have laws that guarantee patients the right to access
their own medical records, but H.R. 354 would preempt
these even though it exempts certain other state laws.
||Who's Reading Your Medical
Records? - Did you know that your health history can
be investigated by insurance companies, government agencies,
and health care personnel? Find out how you can investigate
||Protecting Americans' Medical
Privacy: Why Congress Must Act or Be Acted Upon -
Hundreds of individuals and organizations have access
to your medical records now, whether you know it or not.
The Congressional Research Service reports that according
to one 1996 estimate, during the course of a hospital
stay, as many as 400 people may see at least part of a
patient's medical record.
||Invasion of Medical Privacy - Several bills, approved and signed, contain pieces of
an emerging system that will require every American to
carry a photo ID that would include personal history stored
on a magnetic strip or computer chip.
||Senate Amendment to Stop
National Healthcare ID Proposal - "A plan to assign
every American a lifetime health-care ID number, similar
to a Social Security number, could face new limits under
a measure headed for Senate debate. A provision introduced
Thursday [September 3] by Sen. Kay Bailey Hutchison, R-Texas,
would prohibit the Health and Human Services Department
from going forward with the plan until Congress approves
||Protecting Your Medical Privacy |